So Your Child has a Hearing Loss: Next Steps for Parents
Having Fun and Broadening Horizons
Life cannot be all work! Friends, hobbies, travel, art, sports, family
outings, part-time jobs, etc. all make life richer and more interesting.
When it comes to hobbies and extra-curricular activities, follow
your children's interests, and don't impose any limits or restrictions.
Heather Whitestone, a former Miss America who is deaf, is an
accomplished ballet dancer. Her stunning dance performance during the
Miss America pageant helped clinch the title for her. Curtis Pride,
also hearing impaired, is a professional baseball player. Evelyn
Glennie is considered the world's finest concert drummer, and happens
to have a hearing loss. The fact that there is an association of
private pilots who are deaf is further proof that a hearing loss is not
a barrier to one's passions in life. The Americans With Disabilities
Act has helped make most public facilities accessible to people with
disabilities while advances in technology continue to open doors.
While children should not be limited by hearing loss, they may
also enjoy joining groups or involving themselves in an activity
primarily for children who are deaf or hard of hearing. Being with
other children who have a hearing loss can provide a comfortable
communication setting surrounded by people who may have a special
camaraderie with one another. AG Bell's national mentoring program and
leadership conferences for young adults are designed to facilitate
exactly these sorts of interactions. Mentoring activities provide
children with opportunities to socialize, as well as to meet successful
young adults with hearing loss.
Activities with others who are deaf or hard of hearing
- Camps: There are a number of camps
across the country which are either exclusively for children with
hearing losses, or encourage their participation. Some of these camps
are primarily "manual," some are "oral," and some are mixed. AG Bell
maintains a list of these camps, as do other organizations.
- Peer groups and socializing: Parents
may want to consider establishing a peer support group for their
children with hearing loss. To locate other families with children who
are hearing impaired, contact your state AG Bell chapter, OPTION-a
consortium of private schools for children with hearing loss, or other
schools in the area emphasizing the auditory approach. Groups can be
structured, meeting regularly, or ad hoc, meeting occasionally.
Sessions can be held at your home, or at a museum, park or nearby
restaurant. The objective is simply to provide your child with the
opportunity to meet new people and have fun in a welcoming environment.
Parents also benefit from the support they receive from others who have
experienced the same joys and challenges associated with raising a
child with hearing loss.
- Youth activities at conferences and conventions run by organizations serving deaf persons:
Most large national organizations hold conventions and welcome the
attendance of children. AG Bell, for example, develops a customized
convention program for children and teen attendees that is a mixture of
free play, structured learning opportunities (learning about hearing
loss or self-advocacy), organized activities (like face painting or art
projects) and field trips-all under the watchful eye of our counselors
(who are parents or professionals in the field). Since conventions are
usually held at attractive destinations, many families choose to make
this their summer vacation.
- School Activities: Public schools are
required to provide reasonable accommodation during school activities.
This may take the form of having assistive listening devices available
during the activity, or even providing an interpreter, for example for
a school assembly. Unfortunately the laws do not spell out what is
"reasonable" and the services to be provided are negotiated between
parents and school administrators. If the accommodation places an
excessive financial burden on the school, it may not be deemed
reasonable. For example, it might not be reasonable for the Honor
Society to provide an interpreter for every meeting, but it would be
reasonable to provide an interpreter for an induction banquet, or group
attendance at a cultural event. Another criterion for "reasonable" is
that the special request be made ahead of time, so that the person in
charge of the activity has adequate time to make the appropriate
arrangements.
- The Arts: The Americans with
Disabilities Act requires reasonable accommodation at theatrical and
other cultural events in your community. Again, "reasonable" often
applies to cost and difficulty, although certain accommodations such as
ALDs must be provided. While a non-profit group sponsoring a free play
for children may argue that hiring an interpreter would be overly
burdensome, such a request is likely to be a reasonable accommodation
for institutions supported by government or for-profit entities. Many
theaters have special, interpreted performances or, on request, make
scripts available prior to performances.
- The Movies: The ADA does not require
movies to be open captioned (i.e., captions running across the bottom
of the screen and viewed by the entire audience) but it does encourage
the scheduling of special captioned movie showings. These are being
offered on an increasingly frequent basis. Many large cities now show
captioned versions of first-run movies on a limited schedule. Contact
local organizations serving deaf and hard of hearing persons for
information about captioned movies in your locale, or log onto
www.tripod.org; this site provides a listing of captioned showings
nationwide. Additionally, closed captioning technology such as Rear
Window, which allows viewers with hearing loss to access captioning
that is not visible to the audience at large, has become increasingly
important. The benefits of this technology is that it allows people who
are deaf or hard of hearing to attend any showing of a film that has
been captioned, without having to wait for a special viewing. The
prevalence of closed caption technology is expected to grow, and you
can expect to see more and more innovation in this area as time goes
on.
Additionally, all movie theaters must provide assistive listening
devices (ALDs) upon request. These ALDs should be available at all
showings and, depending on your child's level of loss, can enhance your
child's ability to hear the film's dialogue, songs, etc.
- Sports: Many children with hearing
loss find a "level playing field" in sports. With the emphasis on
physical, rather than linguistic skills, children who are deaf or hard
of hearing can excel in sports activities. The reasonable accommodation
rules apply to sports activities but you will likely need to educate
the organizers about your child's needs.
- Friends: If your child has difficulty
making friends, you can be a catalyst by making your home a warm and
welcoming place for kids to hang out. Have computer games, captioned
videos, sports equipment and, of course, snacks available, and don't
interfere too much!
- Travel: If you travel to large,
popular tourist destinations, like Disney World, you should expect
reasonable accommodations, such as assistive listening devices and
captioning. Even so, it is a good idea to check ahead of time to
confirm what they have available. It's best to make your request for
special accommodations ahead of time as well. If your child uses a TTY,
a hotel should provide one; once again, it's wise to request this
equipment when making your reservation, rather than upon arrival. All
public accommodations-meaning all facilities that are open to the
public-must provide reasonable accommodation, such as TTYs, pay-phone
TTYs, amplified phones, interpreted programs, etc.
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